Advocacy Partner: Fatty Liver Foundation
About Fatty Liver Foundation
Founded in 2017, the Fatty Liver Foundation is a national non-profit patient organization dedicated to improving the identification, diagnosis, treatment, and support of individuals living with steatotic liver disease (SLD) across its full spectrum, including MASLD, MASH, MetALD, and ALD. Through awareness, community-based screening, education, and advocacy, FLF works to ensure that every person, regardless of where they live or their ability to pay, can access the care and support they need to live well with liver disease.
Contact: Henry E. Chang – Executive Director
Phone: (917)-400-8900
Email: [email protected]
Resources
The Wellness League Search Tool
Find free and low-cost resources near you with The Wellness League Search Tool. Explore support for mental health, nutrition, disability and Medicare guidance, prescription savings, exercise and fitness, transportation to medical appointments, and more.
Talk with Your Doctor Guides MASLD/MASH
Whether you’ve been recently diagnosed with MASLD, MASH or have been living with your condition for years, talking with your doctor about your condition and management can be intimidating. However, it’s very important to ask questions and make sure you understand what’s going on inside your body. After all, this is your body and you are in charge of how you care for it after leaving the doctor’s office.
We created two Talk With Your Doctor guides, one for MASLD and one for MASH, to help you start or get better at having meaningful conversations with your doctor about your diagnosis and management plan. Please be aware that not all doctors have expertise in MASLD and MASH to answer these questions to your satisfaction. Hepatologists (liver specialists) will be more familiar with MASLD and MASH.
Click below to access the downloadable and printable document for your condition.
Get Your MASLD Download and Print Guide Here
More Tomorrows: LIV (Learn, Inspire, and Value) for Liver Health Webinar Series
This is a webinar series designed to educate, empower, and engage patients and care partners living with steatotic liver disease. Each session delivers timely insights from leading experts while amplifying the patient voice in the fight against liver disease.
Harrison Patient Advocacy Fellowship Program
The Dr. Stephen A. Harrison Patient Advocacy Fellowship Program is a pioneering initiative designed to elevate the role of patient advocates in MASH (Metabolic Dysfunction-Associated Steatohepatitis) and steatotic liver disease research, drug and diagnostic development, and policy discussions.
This annual fellowship empowers up to 20 patient advocates by providing financial support, education, and access to key scientific and policy forums where they can contribute meaningfully to shaping the future of liver disease care.
The MASLD/MASH State of Care Survey
The MASLD/MASH State of Care Survey is a longitudinal research initiative by the Steatotic Liver Foundation that tracks how patients with metabolic liver disease experience their care over time.
By capturing real-world patient perspectives year after year, the survey provides critical insights into diagnosis gaps, treatment access, provider communication, and the evolving landscape of MASLD/MASH care.
The survey results are used to inform researchers, clinicians, and policymakers about the real-world state of liver disease care — directly from the patients who live with it every day.
Upcoming events
About Advocacy Partners
The information above is provided by our partner. Learn more about our advocacy partners here.