My sweet tooth gets me into trouble all the time. With Halloween just around the corner, I know my daughter will be taking her little…
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ALAGILLE SYNDROME
ColumnsAfter being defensive about my son and sports, he’s now playing defense
After my son Finley was diagnosed with Alagille syndrome, a number of “what if” questions lingered in the back of my mind. What would…
FATTY LIVER DISEASE
ColumnsBean brownies for MASH? Anything for good fiber!
As a child, I remember being told, quite often actually, that “an apple a day keeps the doctor away.” I never really understood what that…
FATTY LIVER DISEASE
ColumnsPlanning for the end of life when you’re still in the middle of it
It was nearly a decade ago when I was handed my first expiration date. After doing an unplanned and unwanted tour of several hospitals one…
ALAGILLE SYNDROME
ColumnsNow in kindergarten, my son is hinting at a fear of growing up
Over the past year, I was largely focused on the next big change in my family’s life: my youngest son, Finley, starting kindergarten. There would…
FATTY LIVER DISEASE
ColumnsSometimes you are the best expert on your body with MASH
Most of my life has been spent as a writer, but that also means that a good chunk of my life has been spent as…
ALAGILLE SYNDROME
ColumnsFood restrictions at school prompt both worry and compassion
After months of buildup, my youngest son, Finley, who was born with Alagille syndrome, finished his first week of kindergarten. He loved starting school,…
FATTY LIVER DISEASE
ColumnsUnderstanding the connection between type 2 diabetes and fatty liver disease
“Do you have diabetes?” I was sitting in one of those crunchy paper exam-room gowns, going through the usual rigmarole of questions you’re asked while…
ALAGILLE SYNDROME
ColumnsAfter months of anticipation, the first day of kindergarten finally arrived
After months of me writing about it, the day finally arrived: Finley, my youngest son who was born with Alagille syndrome, started kindergarten. It…
FATTY LIVER DISEASE
ColumnsWhat my teenager teaches me about finding my voice and speaking up
My teenage daughter started 10th grade this week. She looked adorable on her first day of school in a ditsy-patterned sundress, her nails painted in…
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