One of the things I’ve been most grateful for over the past few years is simple: I’m not as sick as I once was. When…
Columns
FATTY LIVER DISEASE
ColumnsRegrets, I’ve had a few, but here’s what I learned about life with MASH
As much as I’d like to believe the tough people who say they have “no regrets,” I’m not buying it. You mean to…
ALAGILLE SYNDROME
ColumnsBeing brave will serve my son with Alagille syndrome well
Parenting has taught me a lot. I knew I would be teaching my kids, but I also knew I’d be learning from them along the…
ALAGILLE SYNDROME
ColumnsLearning how to let go of worry isn’t easy as an Alagille parent
I’ve been writing this column for Liver Disease News for just over two years now. When I brainstorm ideas for what to write, I love…
FATTY LIVER DISEASE
ColumnsWhy we might cancel a doctor’s appointment (and why we shouldn’t)
Some of my least-favorite calls to make are to cancel doctor appointments. Maybe it’s the Jenga-like way I have to wedge them into my life.
ALAGILLE SYNDROME
ColumnsMy son’s stubborn determination will aid him in his battle with liver disease
It’s truly rewarding as a parent to see the things that make your children proud. For my 5-year-old son, Finley, it’s making his bed every…
FATTY LIVER DISEASE
ColumnsFearing liver cancer when you’re living with fatty liver disease
Yesterday, as I puttered around my house doing some spring cleaning, I watched a gray, rainy sky turn to snow. The flakes were the chunky…
ALAGILLE SYNDROME
ColumnsI’m grateful to make connections with the rare disease community
Being thrust into the world of rare diseases has been interesting. If you don’t have a personal connection to rare diseases, it’s easy to feel…
FATTY LIVER DISEASE
ColumnsGrappling with sudden change after a liver disease diagnosis
My childhood home was a warm place with two loving parents, my siblings, our pets, and a steady stream of family members and friends constantly…
ALAGILLE SYNDROME
ColumnsAs our son grows, we’ll always seek opportunities to advocate for him
Lately, I’ve found it easier to settle into the flow of daily life than in previous years. Routines have developed, and the weekly rhythms now…
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