Discussion
After my son Finley was diagnosed with Alagille syndrome, a number of “what if” questions lingered in the back of my mind. What would…
Alagille syndrome
Featured resources
Alagille syndrome is a genetic disease that can cause a wide range of symptoms, typically including liver problems as well as heart issues and characteristic changes in the shape of the face.
A range of treatment options, including medications and surgical procedures, are available for managing Alagille syndrome symptoms and improving quality of life for patients
Latest news & perspectives
Discussion
Discussion
Over the past year, I was largely focused on the next big change in my family’s life: my youngest son, Finley, starting kindergarten. There would…
Discussion
After months of buildup, my youngest son, Finley, who was born with Alagille syndrome, finished his first week of kindergarten. He loved starting school,…
