My sons Jackson and Finley love the summer, when their schedules ease up. They spend their days adventuring in the neighborhood and splashing around in…
Columns
ALAGILLE SYNDROME
ColumnsA Q&A with med students helps to keep the ‘patient’ in patient care
One thing that’s important to me as a parent raising a child with a rare genetic condition is to be able to help share the…
FATTY LIVER DISEASE
ColumnsAdaptogens and MASH: To me, ‘probably fine’ is not a medical plan
It was the happy little mushroom peeking out from a trash can and winking at a neighbor across the street that grabbed my attention. No,…
When you have a child with a rare genetic condition, you realize quickly that there’s no blueprint for raising their siblings. When my son Finley…
FATTY LIVER DISEASE
ColumnsWhat the recent protein craze means for those of us with liver disease
YouTube is one of my guiltiest pleasures. I watch everything from cultural and historical videos to food, entertainment, and political channels, especially when the subject…
ALAGILLE SYNDROME
ColumnsA ‘graduation’ photo prompts reflection on a family’s Alagille journey
I’ve found myself reflecting a lot recently as my two boys close their current chapters in life and head into new ones. Part of what…
FATTY LIVER DISEASE
ColumnsHow alcohol contributes to MASH and other types of liver disease
Summers in Utah, where I grew up, meant hot days spent boating and swimming in lakes. For my friends and me, they also meant drinking…
FATTY LIVER DISEASE
ColumnsThere are ways to manage chronic pain when you’re living with MASH
I start my day every morning by swallowing a handful of pills with water I keep on my nightstand. It has been this way for…
ALAGILLE SYNDROME
ColumnsI don’t want my son’s small size to keep him from doing what he enjoys
As a dad, I enjoy seeing my sons figure out what interests them. I have two boys — Jackson, 8, and Finley, 5 — and…
FATTY LIVER DISEASE
ColumnsThe importance of reading your medical records when living with MASH
Today, I sat down to go over my upcoming summer doctor appointments because ’tis the season for my annual upper and lower gastrointestinal scopes and…
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