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Eating is one of my pleasures in life, especially when the food is good. However, my current diet is much healthier than it was when…

Preparing a child for surgery is scary, as I’m being reminded. My 4-year-old son, Finley, is scheduled to have a small procedure to fix a…

Last May, I turned 56. I feel OK about being in middle age, but I’ve long had fears about growing old. What I didn’t anticipate…

Rare diseases bring a lot of unknowns to the lives of patients, caregivers, and family members. We caregivers often worry about what might be looming…

Before I learned I was pregnant, I used to participate in medical studies to earn a little extra money. Living in a city with two…

Every time I meet another family raising a child with Alagille syndrome, the topic of medication comes up. I have found that parents and…

In my nearly century-old house, most of my floors are hardwood or tile. In 1929, brooms did the trick, but my two cats, though short-haired,…

Bedtime has been tricky in my house over the past few months. My son Finley, who was born with Alagille syndrome, just doesn’t seem…

This week, I was on the hunt for a party dress for my 14-year-old daughter, who was invited to her best friend’s birthday party. I’ve…

Traveling with young kids is always a bit of a gamble. Now that my boys are 7 and 4, they’re a heck of a lot…