When I was in fourth grade, I was suddenly promoted into the gifted and talented program. I didn’t realize that being a mouthy brat who…
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ALAGILLE SYNDROME
ColumnsMonitoring our son’s nutrition can be extra challenging during travel
Life has been busy in our household. School has been in session for over a month, our oldest son is playing fall baseball, and we…
FATTY LIVER DISEASE
ColumnsThe health risks of soda, including liver damage, are increasingly clear
In the cola wars of the 1980s, Coke and Pepsi went head-to-head in taste tests to “prove” which was America’s favorite. I was a Coke…
FATTY LIVER DISEASE
ColumnsA new tool may help predict your future with liver disease
One of the hardest parts of living with metabolic dysfunction-associated steatohepatitis (MASH) is carrying regrets about the past. The first time your doctor noticed…
FATTY LIVER DISEASE
ColumnsChanges big and small can benefit those of us with MASH
This morning I woke up to a changed forest outside my window. I live in a beautiful park in Baltimore, and I bought my house…
ALAGILLE SYNDROME
ColumnsOptimism replaces worry following a post-surgery scare
Back in August, I wrote about managing my worries as we prepared for a small surgery to correct a hydrocele in our 4-year-old son,…
FATTY LIVER DISEASE
ColumnsA smartwatch helps me monitor symptoms of fatty liver disease
Since I learned I’d become a full-fledged metabolic dysfunction-associated steatohepatitis (MASH) patient, I’ve collected an assortment of friends with different medical issues. One of…
ALAGILLE SYNDROME
ColumnsAdapting to a new routine is made harder by regular hospital visits
Our family has been extremely busy lately. The beginning of the school year is always an exciting yet exhausting time as we settle back into…
FATTY LIVER DISEASE
ColumnsWhen facing a hospital stay, pack a bag and hope for chocolate cake
I enjoy listening to the sounds of the city outside my bedroom window at night. Cars hum down the thoroughfare where I live, their headlights…
ALAGILLE SYNDROME
ColumnsSavoring the everyday moments that bring joy to our lives
When my youngest son, Finley, was diagnosed with Alagille syndrome, a million questions flooded my mind. I wanted to know if he’d be able…
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