Columns

Rare diseases bring a lot of unknowns to the lives of patients, caregivers, and family members. We caregivers often worry about what might be looming…

Before I learned I was pregnant, I used to participate in medical studies to earn a little extra money. Living in a city with two…

Every time I meet another family raising a child with Alagille syndrome, the topic of medication comes up. I have found that parents and…

In my nearly century-old house, most of my floors are hardwood or tile. In 1929, brooms did the trick, but my two cats, though short-haired,…

Bedtime has been tricky in my house over the past few months. My son Finley, who was born with Alagille syndrome, just doesn’t seem…

This week, I was on the hunt for a party dress for my 14-year-old daughter, who was invited to her best friend’s birthday party. I’ve…

Traveling with young kids is always a bit of a gamble. Now that my boys are 7 and 4, they’re a heck of a lot…

To me, modern life equals stress. Like everyone else, I’m not immune to the effects of stress on my life. However, as a single mother…

Vacation is all most of us ever want after slogging through spring’s yearning and the early promise of a great summer. We fly to foreign…

During my time writing columns for Liver Disease News, I’ve often shared about themes like worry, stress, and anxiety. These are common feelings when you’re…