As I write this, the sun is rising. This crisp, lovely time of year is my favorite season — the calm just before the holiday…
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ALAGILLE SYNDROME
ColumnsKeeping that cloud of uncertainty at bay for yet another day
Alagille syndrome is such an interesting condition in that it affects every individual differently. With my 4-year-old son, Finley, who has the syndrome, much…
FATTY LIVER DISEASE
ColumnsSurgery with liver disease is risky, but I’m holding steady
Shortly after I was diagnosed with metabolic dysfunction-associated steatohepatitis (MASH), my gastroenterologist told me that, unless it was an emergency, elective surgeries were off…
FATTY LIVER DISEASE
ColumnsFinding hope for the future of transplants in a pig liver
When I was in fourth grade, I was suddenly promoted into the gifted and talented program. I didn’t realize that being a mouthy brat who…
ALAGILLE SYNDROME
ColumnsMonitoring our son’s nutrition can be extra challenging during travel
Life has been busy in our household. School has been in session for over a month, our oldest son is playing fall baseball, and we…
FATTY LIVER DISEASE
ColumnsThe health risks of soda, including liver damage, are increasingly clear
In the cola wars of the 1980s, Coke and Pepsi went head-to-head in taste tests to “prove” which was America’s favorite. I was a Coke…
FATTY LIVER DISEASE
ColumnsA new tool may help predict your future with liver disease
One of the hardest parts of living with metabolic dysfunction-associated steatohepatitis (MASH) is carrying regrets about the past. The first time your doctor noticed…
FATTY LIVER DISEASE
ColumnsChanges big and small can benefit those of us with MASH
This morning I woke up to a changed forest outside my window. I live in a beautiful park in Baltimore, and I bought my house…
ALAGILLE SYNDROME
ColumnsOptimism replaces worry following a post-surgery scare
Back in August, I wrote about managing my worries as we prepared for a small surgery to correct a hydrocele in our 4-year-old son,…
FATTY LIVER DISEASE
ColumnsA smartwatch helps me monitor symptoms of fatty liver disease
Since I learned I’d become a full-fledged metabolic dysfunction-associated steatohepatitis (MASH) patient, I’ve collected an assortment of friends with different medical issues. One of…
Recent Posts
- Making room for a busy life, even with liver disease
- Creating the resource I needed after my son’s Alagille syndrome diagnosis
- Guest Voice: Tapping into the power of advocacy and community support
- With liver disease, OTC medicines aren’t always the answer for a cold
- Changing backpacks is the right fit for my son with Alagille syndrome