Today felt like a day worth celebrating. My latest round of labs came back for my model for end-stage liver disease (MELD) score, and…
Columns
ALAGILLE SYNDROME
ColumnsSoaking in the season of joy is extra special this year
Raising kids is tough. Speaking for myself, as someone who often recharges with alone time, having two young boys has been a struggle at times.
FATTY LIVER DISEASE
ColumnsStaying on top of MASH may mean not staying on the transplant list
The past two months have been a whirlwind. I had my left knee replaced in late October, which forced me to slow down and truly…
FATTY LIVER DISEASE
ColumnsWith MASH, it’s important to be aware of liver cancer risk factors
A few years ago, I had a frightening visit with my doctor. I’d just moved into my new house and changed my cellphone number, and…
ALAGILLE SYNDROME
ColumnsAn easy transition to new vitamins is a breakthrough for my son
Our son Finley is a strong-willed and determined little guy. As he approaches his fifth birthday, he’s not shy about sharing his opinions. If he…
FATTY LIVER DISEASE
ColumnsAccess to food is a survival tactic when your liver needs nutrition
Growing up in a dusty Utah town, my life looked nothing like the one I lead today. My parents worked hard, but the early 1980s…
ALAGILLE SYNDROME
ColumnsParents and son are all on a path of discovery with Alagille syndrome
Our son Finley was born with Alagille syndrome in 2021. Since then, I’ve been on a journey to learn about his rare disease and…
FATTY LIVER DISEASE
ColumnsThis fatty liver disease diagnosis reminded me heroes are human
When I was a teenager, I fell in love with football. Growing up in Utah, a place that still doesn’t have an NFL franchise, meant…
ALAGILLE SYNDROME
ColumnsA boys’ day out brings a welcome sense of normalcy
When I brainstorm column topics, I often find that I lean into the stress and anxiety that come from raising a child with a rare…
FATTY LIVER DISEASE
ColumnsWith MASH, managing pain after a major surgery is tricky
It’s been two and a half weeks since I had a total knee replacement, and I’ve been managing a lot. Mostly, that’s been pain, but…
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