Until this point in time, when it has come to raising my 5-year-old son, Finley, one of the things I’ve been focused on is managing…
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FATTY LIVER DISEASE
ColumnsMystery symptoms and MASH: Your doctor is an ally in solving the puzzle
Long before I ever set foot inside my gastroenterologist’s office to discuss my liver health and metabolic dysfunction-associated steatohepatitis (MASH), I was diagnosed with…
ALAGILLE SYNDROME
ColumnsSeeing that my son was tall enough to play was a joyful moment
One thing I have learned to appreciate about raising children is that you are often proven wrong about the things you worry about. …
FATTY LIVER DISEASE
ColumnsKeeping secrets from your doctor could hurt your health
Your liver may store excess fat when you’re living with metabolic dysfunction-associated steatohepatitis (MASH), but does it also store secrets you’re keeping from your…
ALAGILLE SYNDROME
ColumnsTaking steps to manage my son’s itch as the heat rises
Living in the Pacific Northwest, I look forward to the changing of the seasons. While I certainly enjoy aspects of the fall and winter, I…
FATTY LIVER DISEASE
ColumnsI’m off the transplant list after 9 years of living with MASH
The email wasn’t unexpected. Earlier in the week, I had received a call from my transplant coordinator at one of the two hospitals where I’m…
ALAGILLE SYNDROME
ColumnsWatching my son grow and realizing he’s not defined by his rare disease
One of my favorite things about raising kids is seeing them figure out what they like doing, what sparks their interest and joy. When they…
FATTY LIVER DISEASE
ColumnsThe possibility for liver function to improve brings me hope
One of the things I’ve been most grateful for over the past few years is simple: I’m not as sick as I once was. When…
FATTY LIVER DISEASE
ColumnsRegrets, I’ve had a few, but here’s what I learned about life with MASH
As much as I’d like to believe the tough people who say they have “no regrets,” I’m not buying it. You mean to…
ALAGILLE SYNDROME
ColumnsBeing brave will serve my son with Alagille syndrome well
Parenting has taught me a lot. I knew I would be teaching my kids, but I also knew I’d be learning from them along the…
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