Columns

Yesterday, as I puttered around my house doing some spring cleaning, I watched a gray, rainy sky turn to snow. The flakes were the chunky…

Being thrust into the world of rare diseases has been interesting. If you don’t have a personal connection to rare diseases, it’s easy to feel…

My childhood home was a warm place with two loving parents, my siblings, our pets, and a steady stream of family members and friends constantly…

Lately, I’ve found it easier to settle into the flow of daily life than in previous years. Routines have developed, and the weekly rhythms now…

Note: This column describes the author’s own experiences with vitamin supplementation. Not everyone will have the same response to treatment. Consult your doctor before starting…

Now that my son Finley is 5, I’ve been reflecting a lot. That’s why so many of my recent columns have focused on the milestones…

I’m not perfect. Sure, I’d love to possess the unshakable confidence of people who seem convinced they are, but I’ve learned to accept most of…

While my “Be Rare with Finn” column focuses on my youngest son, Finley, and his journey with Alagille syndrome, Finley is not my only…

After struggling with my health for years, mainly due to metabolic dysfunction-associated steatohepatitis (MASH), my life has taken a dramatic turn for the better.

Everyone always says that time flies when you are raising kids. Many have told me that one day, you blink, and they’ve gone from crawling…