Be Rare with Finn - a Column by Jay Sandstrom

It’s challenging for me to look far into the future, as I tend to remain grounded in the present. It’s not that I don’t plan…

As my kids age, I am teaching them responsibility. We talk about their duties at home, at school, and in public. Some of these come…

Raising kids is tough. Speaking for myself, as someone who often recharges with alone time, having two young boys has been a struggle at times.

Our son Finley is a strong-willed and determined little guy. As he approaches his fifth birthday, he’s not shy about sharing his opinions. If he…

Our son Finley was born with Alagille syndrome in 2021. Since then, I’ve been on a journey to learn about his rare disease and…

When I brainstorm column topics, I often find that I lean into the stress and anxiety that come from raising a child with a rare…

Watching your child achieve milestones is one of the most rewarding aspects of being a parent. The joy they exude when learning or accomplishing something…

Alagille syndrome is such an interesting condition in that it affects every individual differently. With my 4-year-old son, Finley, who has the syndrome, much…

Life has been busy in our household. School has been in session for over a month, our oldest son is playing fall baseball, and we…

Back in August, I wrote about managing my worries as we prepared for a small surgery to correct a hydrocele in our 4-year-old son,…