A Father’s Day in the life of a busy caregiver
When I sat down to write this column, I hit a bit of an initial roadblock. I’ve been writing columns here for over a year…
Alagille syndrome
Targeted chemotherapy effective for HCC in woman with Alagille
A targeted treatment called transarterial chemoembolization (TACE) successfully helped control hepatocellular carcinoma (HCC), the most common type of liver cancer, in a young woman with…
Despite my worries, my son is excelling in his private swim lessons
My son Finley is a ball of energy. At times, he’s hard to contain. He’s opinionated and, like all 4-year-olds, has extremely selective hearing. And…
The mistake that stands out in an already difficult morning
I’m not a morning person. Truthfully, nobody in my household is. Still, our weekday morning routine frequently features at least one sleepy and grumpy individual.
Gene therapy shows promise for Alagille liver disease: Mouse study
The use of an experimental, one-time gene therapy in a mouse model of Alagille syndrome increased the number of bile ducts — tubes that…
With Alagille syndrome, sick days can be concerning
My two young boys are in full-time day care or school, so we’re no strangers to illness in our household. Between the sniffles, the coughs,…
Shipping medication is convenient, but it can also provoke anxiety
I’d describe myself as pretty easygoing. I’m by no means a control freak, but I’m also the type of person who likes paying bills one…
Elevated skull pressure leads to vision loss in Alagille: Case study
A young woman with Alagille syndrome (AGLS) developed profound vision loss due to increased pressure inside the skull following multiple brain bleeds, according to…
Managing potty training difficulties with my son with Alagille
Potty training, in my experience, has to be one of the hardest parts of parenting a young child. For my 4-year-old son, Finley, who is…
Setting my worries aside as my son tries different activities
My son Finley is a little ball of energy. He is super active and doesn’t like to rest or sleep. At 4 years old, he’s…
