Life has been busy in our household. School has been in session for over a month, our oldest son is playing fall baseball, and we…
Alagille syndrome
ALAGILLE SYNDROME
NewsLivmarli eases Alagille teen’s itch following liver transplant issues
Treatment with Livmarli (maralixibat) quickly and safely reduced severe itching in a 16-year-old boy with Alagille syndrome after his transplanted liver started to malfunction,…
BILIARY ATRESIA
NewsLiver Foundation honors family who turned diagnosis into giving
A family whose experience with biliary atresia led to an effort to help others navigate the challenges of pediatric liver disease is among those being…
LIVER DISEASE
NewsALF unveils network to connect living donors with strangers in need
The American Liver Foundation (ALF) is launching a first-of-its kind national database, called the ALF Living Donor Network, to connect people willing to…
LIVER DISEASE
NewsKnow your risks – and options – this National Liver Awareness Month
October is National Liver Awareness Month and Liver Cancer Awareness Month, and advocacy organizations across the U.S., including the American Liver Foundation (ALF), are…
ALAGILLE SYNDROME
ColumnsOptimism replaces worry following a post-surgery scare
Back in August, I wrote about managing my worries as we prepared for a small surgery to correct a hydrocele in our 4-year-old son,…
ALAGILLE SYNDROME
ColumnsAdapting to a new routine is made harder by regular hospital visits
Our family has been extremely busy lately. The beginning of the school year is always an exciting yet exhausting time as we settle back into…
ALAGILLE SYNDROME
NewsBylvay now approved in Canada to treat adults, children with Alagille
Bylvay (odevixibat), an oral medication used to treat cholestatic pruritus — severe itching that results from a buildup of bile acids used in digestion —…
ALAGILLE SYNDROME
ColumnsSavoring the everyday moments that bring joy to our lives
When my youngest son, Finley, was diagnosed with Alagille syndrome, a million questions flooded my mind. I wanted to know if he’d be able…
When I brainstorm ideas for columns, I often end up focusing on similar themes, such as anxiety, stress, complications, difficulties. All those are definitely…
Recent Posts
- Don’t let living with MASH stop you from your New Year’s goals
- Frequent bile acid level checks urged to predict stillbirth in severe ICP
- Wegovy cleared in Canada to treat fatty liver disease MASH
- Medications known as IBATIs are safe, effective in Alagille: Analysis
- New rapid test could accelerate hepatitis C diagnosis and treatment