Alagille syndrome

The U.S. Food and Drug Administration (FDA) has approved an oral tablet formulation of Livmarli (maralixibat) to treat progressive familial intrahepatic cholestasis (PFIC)…

Here in the Pacific Northwest, we are inching into spring. This season brings days that tease us about what the weather could be. A recent…

A 34-year-old woman with Alagille syndrome and vascular problems — who had been implanted with a stent for her narrowed pulmonary arteries — experienced…

My son Finley was recently invited to a birthday party for one of his best friends. He was so excited that he talked about it…

Routine is a huge part of the daily life of raising kids. They make the day go more smoothly, helping everyone know what to expect.

Livmarli (maralixibat) has been approved in Japan for the treatment of itching in people with Alagille syndrome and progressive familial intrahepatic cholestasis (PFIC),…

I wish raising children would come with a checklist. Every day there are so many items to check off in addition to work and staying…

I normally reserve this column for sharing stories about my son Finley, who was born with Alagille syndrome in 2021. Obviously, he deserves the…

More collaborative research is needed to better understand Alagille syndrome and to help overcome challenges related to diagnosing and treating it, according to a…

If you spend enough time around something, you’ll start to notice it less and less. But that’s not always the case with our 4-year-old son,…