Surgery eases symptoms of rare skull condition in boy with Alagille
Craniosynostosis — a condition usually identified in infancy where…
Alagille syndrome is a genetic disease that can cause a wide range of symptoms, typically including liver problems as well as heart issues and characteristic changes in the shape of the face.
Read moreA range of treatment options, including medications and surgical procedures, are available for managing Alagille syndrome symptoms and improving quality of life for patients
Read moreCraniosynostosis — a condition usually identified in infancy where…
Taking my son Finley to various doctor appointments is…
Patients, caregivers, and supporters will head to Washington later…