How I’m learning to cope with challenges as a rare disease parent
Heading into the new year, one thing I’ve chosen…
Alagille syndrome
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Alagille syndrome overview: What you need to know
Alagille syndrome is a genetic disease that can cause a wide range of symptoms, typically including liver problems as well as heart issues and characteristic changes in the shape of the face.
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Alagille syndrome treatment and management options
A range of treatment options, including medications and surgical procedures, are available for managing Alagille syndrome symptoms and improving quality of life for patients
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IBAT inhibitors have potential to boost life quality for patients
Alagille syndrome comes with a high clinical, economic,…
Fielding my son’s new questions about his Alagille syndrome
I knew the questions that would come from my…
