New app designed to be health record, journal for patients
Know Rare, a support platform for people living with rare diseases such as…
Alagille syndrome is a genetic disease that can cause a wide range of symptoms, typically including liver problems as well as heart issues and characteristic changes in the shape of the face.
Read moreA range of treatment options, including medications and surgical procedures, are available for managing Alagille syndrome symptoms and improving quality of life for patients
Read moreKnow Rare, a support platform for people living with rare diseases such as…
I’m fortunate that my son Finley, who was born with Alagille syndrome, has…
Raising young children entails a variety of obstacles. For me, one of the most…