Alagille syndrome

Over the past year, I was largely focused on the next big change in my family’s life: my youngest son, Finley, starting kindergarten. There would…

After months of buildup, my youngest son, Finley, who was born with Alagille syndrome, finished his first week of kindergarten. He loved starting school,…

After months of me writing about it, the day finally arrived: Finley, my youngest son who was born with Alagille syndrome, started kindergarten. It…

With the end of summer nearly upon us here in the Pacific Northwest, we’re already feeling the shift in seasons. The new school year is…

As my summer in the Pacific Northwest comes to a close, I’m reflecting on everything I’ve done. Time has flown by so quickly; when raising…

My sons Jackson and Finley love the summer, when their schedules ease up. They spend their days adventuring in the neighborhood and splashing around in…

One thing that’s important to me as a parent raising a child with a rare genetic condition is to be able to help share the…

Children hospitalized with Alagille syndrome commonly had narrowing in the branches of the pulmonary artery, which carries blood from the heart to the lungs,…

When you have a child with a rare genetic condition, you realize quickly that there’s no blueprint for raising their siblings. When my son Finley…

I’ve found myself reflecting a lot recently as my two boys close their current chapters in life and head into new ones. Part of what…