Alagille syndrome

As my kids age, I am teaching them responsibility. We talk about their duties at home, at school, and in public. Some of these come…

Livmarli (maralixibat) and Bylvay (odevixibat) not only offer significant relief from severe itching in children with Alagille syndrome, but also improve quality…

Raising kids is tough. Speaking for myself, as someone who often recharges with alone time, having two young boys has been a struggle at times.

Livmarli (maralixibat) safely eased severe, treatment-resistant itching in two girls with Alagille syndrome who previously underwent surgical biliary diversion (SBD), a procedure that…

Our son Finley is a strong-willed and determined little guy. As he approaches his fifth birthday, he’s not shy about sharing his opinions. If he…

Our son Finley was born with Alagille syndrome in 2021. Since then, I’ve been on a journey to learn about his rare disease and…

When I brainstorm column topics, I often find that I lean into the stress and anxiety that come from raising a child with a rare…

An experimental antisense oligonucleotide (ASO) therapy designed to boost production of the Jagged-1 protein — which is known as Jag1 in mice and JAG1 in…

Watching your child achieve milestones is one of the most rewarding aspects of being a parent. The joy they exude when learning or accomplishing something…

Alagille syndrome is such an interesting condition in that it affects every individual differently. With my 4-year-old son, Finley, who has the syndrome, much…