Alagille syndrome

While my “Be Rare with Finn” column focuses on my youngest son, Finley, and his journey with Alagille syndrome, Finley is not my only…

Children with Alagille syndrome who have lower blood levels of bile acids, the main component of the digestive fluid bile, have better long-term liver…

Everyone always says that time flies when you are raising kids. Many have told me that one day, you blink, and they’ve gone from crawling…

Raising my son Finley, who was born with Alagille syndrome, has taught me to adapt to countless challenges, including new medications, unfamiliar terminology, and…

Livmarli (maralixibat) successfully cleared rare, debilitating fatty skin growths and eased chronic itching in two young boys with Alagille syndrome in the U.S., according…

One of the greatest joys of watching our son Finley grow up has been witnessing his growing appreciation for milestones and special occasions. Most recently,…

When you’re raising a child with a rare disease like Alagille syndrome, you become very familiar with their care team. My 5-year-old son, Finley,…

An oral tablet formulation of Livmarli (maralixibat) is now approved in Canada to treat pruritus (itching) caused by Alagille syndrome. An oral solution…

February is Rare Liver Diseases Month, and this year, the Global Liver Institute (GLI) is highlighting the importance of early diagnosis for better health…

I had never heard of Alagille syndrome until my son Finley was diagnosed with it. And in the five years since he was born,…