Be Rare with Finn - a Column by Jay Sandstrom

Preparing a child for surgery is scary, as I’m being reminded. My 4-year-old son, Finley, is scheduled to have a small procedure to fix a…

Rare diseases bring a lot of unknowns to the lives of patients, caregivers, and family members. We caregivers often worry about what might be looming…

Every time I meet another family raising a child with Alagille syndrome, the topic of medication comes up. I have found that parents and…

Bedtime has been tricky in my house over the past few months. My son Finley, who was born with Alagille syndrome, just doesn’t seem…

Traveling with young kids is always a bit of a gamble. Now that my boys are 7 and 4, they’re a heck of a lot…

During my time writing columns for Liver Disease News, I’ve often shared about themes like worry, stress, and anxiety. These are common feelings when you’re…

When I sat down to write this column, I hit a bit of an initial roadblock. I’ve been writing columns here for over a year…

My son Finley is a ball of energy. At times, he’s hard to contain. He’s opinionated and, like all 4-year-olds, has extremely selective hearing. And…

I’m not a morning person. Truthfully, nobody in my household is. Still, our weekday morning routine frequently features at least one sleepy and grumpy individual.

My two young boys are in full-time day care or school, so we’re no strangers to illness in our household. Between the sniffles, the coughs,…