Be Rare with Finn - a Column by Jay Sandstrom

After my son Finley was diagnosed with Alagille syndrome, a number of “what if” questions lingered in the back of my mind. What would…

Over the past year, I was largely focused on the next big change in my family’s life: my youngest son, Finley, starting kindergarten. There would…

After months of buildup, my youngest son, Finley, who was born with Alagille syndrome, finished his first week of kindergarten. He loved starting school,…

After months of me writing about it, the day finally arrived: Finley, my youngest son who was born with Alagille syndrome, started kindergarten. It…

With the end of summer nearly upon us here in the Pacific Northwest, we’re already feeling the shift in seasons. The new school year is…

As my summer in the Pacific Northwest comes to a close, I’m reflecting on everything I’ve done. Time has flown by so quickly; when raising…

If there is one thing I think I’m pretty good at, it’s packing for a trip. I’m pretty efficient about choosing what to bring, making…

I worry a lot about my son Finley, who was born with Alagille syndrome. At the start of his life, I worried about whether…

My sons Jackson and Finley love the summer, when their schedules ease up. They spend their days adventuring in the neighborhood and splashing around in…

One thing that’s important to me as a parent raising a child with a rare genetic condition is to be able to help share the…