Watching your child achieve milestones is one of the most rewarding aspects of being a parent. The joy they exude when learning or accomplishing something…
Be Rare with Finn - a Column by Jay Sandstrom
ALAGILLE SYNDROME
ColumnsKeeping that cloud of uncertainty at bay for yet another day
Alagille syndrome is such an interesting condition in that it affects every individual differently. With my 4-year-old son, Finley, who has the syndrome, much…
ALAGILLE SYNDROME
ColumnsMonitoring our son’s nutrition can be extra challenging during travel
Life has been busy in our household. School has been in session for over a month, our oldest son is playing fall baseball, and we…
ALAGILLE SYNDROME
ColumnsOptimism replaces worry following a post-surgery scare
Back in August, I wrote about managing my worries as we prepared for a small surgery to correct a hydrocele in our 4-year-old son,…
ALAGILLE SYNDROME
ColumnsAdapting to a new routine is made harder by regular hospital visits
Our family has been extremely busy lately. The beginning of the school year is always an exciting yet exhausting time as we settle back into…
ALAGILLE SYNDROME
ColumnsSavoring the everyday moments that bring joy to our lives
When my youngest son, Finley, was diagnosed with Alagille syndrome, a million questions flooded my mind. I wanted to know if he’d be able…
When I brainstorm ideas for columns, I often end up focusing on similar themes, such as anxiety, stress, complications, difficulties. All those are definitely…
ALAGILLE SYNDROME
ColumnsFacing unexpected complications after a routine surgery
The last few weeks have been a roller coaster as we near the end of summer, prepare for school to start, and navigate a surgery…
ALAGILLE SYNDROME
ColumnsNew battles royales as new medicines are added to the mix
My son Finley is like most other kids his age: He benefits from routine and likes knowing what to expect. He’s not a fan of…
ALAGILLE SYNDROME
ColumnsPreparing my son with Alagille syndrome, and myself, for surgery
Preparing a child for surgery is scary, as I’m being reminded. My 4-year-old son, Finley, is scheduled to have a small procedure to fix a…
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