Focus of World Liver Day this April 19 is role of diet in liver health
Supporters are gearing up for World Liver Day on April 19 — marked by a global campaign to raise awareness about liver health and…
Alagille syndrome
FDA approves Livmarli oral tablets for PFIC, Alagille
The U.S. Food and Drug Administration (FDA) has approved an oral tablet formulation of Livmarli (maralixibat) to treat progressive familial intrahepatic cholestasis (PFIC)…
Preparing my son for warmer weather, which exacerbates his itch
Here in the Pacific Northwest, we are inching into spring. This season brings days that tease us about what the weather could be. A recent…
COVID-19 complicates vascular problems in woman with Alagille
A 34-year-old woman with Alagille syndrome and vascular problems — who had been implanted with a stent for her narrowed pulmonary arteries — experienced…
Celebrating my son’s growth with Alagille syndrome
My son Finley was recently invited to a birthday party for one of his best friends. He was so excited that he talked about it…
Taking vitamins is a challenging change of routine
Routine is a huge part of the daily life of raising kids. They make the day go more smoothly, helping everyone know what to expect.
Livmarli approved in Japan as itching treatment for Alagille, PFIC
Livmarli (maralixibat) has been approved in Japan for the treatment of itching in people with Alagille syndrome and progressive familial intrahepatic cholestasis (PFIC),…
Giving ourselves grace amid a hectic schedule and missed appointments
I wish raising children would come with a checklist. Every day there are so many items to check off in addition to work and staying…
Why community is important for parents of children with Alagille
I normally reserve this column for sharing stories about my son Finley, who was born with Alagille syndrome in 2021. Obviously, he deserves the…
More collaborative Alagille research is needed, review study says
More collaborative research is needed to better understand Alagille syndrome and to help overcome challenges related to diagnosing and treating it, according to a…
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