An easy transition to new vitamins is a breakthrough for my son
Our son Finley is a strong-willed and determined little guy. As he approaches his fifth birthday, he’s not shy about sharing his opinions. If he…
Be Rare with Finn — Jay Sandstrom
Jay Sandstrom and his wife, Dani, have two children, Jackson and Finley. Finley was diagnosed with Alagille syndrome as an infant. Since that moment, Jay and Dani have worked to spread awareness about Alagille syndrome and provide a resource for newly diagnosed families that they wish they’d had access to. Through his column, “Be Rare with Finn,” Jay hopes to show that while being a caregiver for a child with a rare genetic disease comes with its challenges, it also brings many opportunities for celebration. Jay aims to provide a glimpse into what living with Alagille syndrome looks like for his son Finley and their family.
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Soaking in the season of joy is extra special this year
Raising kids is tough. Speaking for myself, as someone who often recharges with alone time, having two young boys has been a struggle at times. When our youngest son, Finley, was diagnosed with Alagille syndrome, it added another layer of worry and challenge to our family life. I’m working…
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