Be Rare with Finn - a Column by Jay Sandstrom

When I brainstorm column topics, I often find that I lean into the stress and anxiety that come from raising a child with a rare…

Watching your child achieve milestones is one of the most rewarding aspects of being a parent. The joy they exude when learning or accomplishing something…

Alagille syndrome is such an interesting condition in that it affects every individual differently. With my 4-year-old son, Finley, who has the syndrome, much…

Life has been busy in our household. School has been in session for over a month, our oldest son is playing fall baseball, and we…

Back in August, I wrote about managing my worries as we prepared for a small surgery to correct a hydrocele in our 4-year-old son,…

Our family has been extremely busy lately. The beginning of the school year is always an exciting yet exhausting time as we settle back into…

When my youngest son, Finley, was diagnosed with Alagille syndrome, a million questions flooded my mind. I wanted to know if he’d be able…

When I brainstorm ideas for columns, I often end up focusing on similar themes, such as anxiety, stress, complications, difficulties. All those are definitely…

The last few weeks have been a roller coaster as we near the end of summer, prepare for school to start, and navigate a surgery…

My son Finley is like most other kids his age: He benefits from routine and likes knowing what to expect. He’s not a fan of…