Be Rare with Finn - a Column by Jay Sandstrom

Our brains work in fascinating ways. One moment, you are in the middle of a completely mundane task, and suddenly, you are whisked back in…

When I was little, I was a picky eater. A big fan of peanut butter and jelly, I wasn’t super adventurous and didn’t really eat…

It’s challenging for me to look far into the future, as I tend to remain grounded in the present. It’s not that I don’t plan…

As my kids age, I am teaching them responsibility. We talk about their duties at home, at school, and in public. Some of these come…

Raising kids is tough. Speaking for myself, as someone who often recharges with alone time, having two young boys has been a struggle at times.

Our son Finley is a strong-willed and determined little guy. As he approaches his fifth birthday, he’s not shy about sharing his opinions. If he…

Our son Finley was born with Alagille syndrome in 2021. Since then, I’ve been on a journey to learn about his rare disease and…

When I brainstorm column topics, I often find that I lean into the stress and anxiety that come from raising a child with a rare…

Watching your child achieve milestones is one of the most rewarding aspects of being a parent. The joy they exude when learning or accomplishing something…

Alagille syndrome is such an interesting condition in that it affects every individual differently. With my 4-year-old son, Finley, who has the syndrome, much…