I’d describe myself as pretty easygoing. I’m by no means a control freak, but I’m also the type of person who likes paying bills one…
Be Rare with Finn - a Column by Jay Sandstrom
ALAGILLE SYNDROME
ColumnsManaging potty training difficulties with my son with Alagille
Potty training, in my experience, has to be one of the hardest parts of parenting a young child. For my 4-year-old son, Finley, who is…
ALAGILLE SYNDROME
ColumnsSetting my worries aside as my son tries different activities
My son Finley is a little ball of energy. He is super active and doesn’t like to rest or sleep. At 4 years old, he’s…
ALAGILLE SYNDROME
ColumnsLearning to give grace to our sometimes mercurial 4-year-old
Saying that 4-year-olds can have crazy attitudes is not a groundbreaking statement. It’s not unusual for my son Finley to have wild swings from happy…
ALAGILLE SYNDROME
ColumnsWhy ultrasounds bring out my parental anxiety
Taking my son Finley to various doctor appointments is nothing new. Since he was born a month early, visiting doctors and seeing various specialists…
ALAGILLE SYNDROME
ColumnsPreparing my son for warmer weather, which exacerbates his itch
Here in the Pacific Northwest, we are inching into spring. This season brings days that tease us about what the weather could be. A recent…
ALAGILLE SYNDROME
ColumnsCelebrating my son’s growth with Alagille syndrome
My son Finley was recently invited to a birthday party for one of his best friends. He was so excited that he talked about it…
ALAGILLE SYNDROME
ColumnsTaking vitamins is a challenging change of routine
Routine is a huge part of the daily life of raising kids. They make the day go more smoothly, helping everyone know what to expect.
ALAGILLE SYNDROME
ColumnsGiving ourselves grace amid a hectic schedule and missed appointments
I wish raising children would come with a checklist. Every day there are so many items to check off in addition to work and staying…
ALAGILLE SYNDROME
ColumnsWhy community is important for parents of children with Alagille
I normally reserve this column for sharing stories about my son Finley, who was born with Alagille syndrome in 2021. Obviously, he deserves the…
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