Be Rare with Finn - a Column by Jay Sandstrom

If you spend enough time around something, you’ll start to notice it less and less. But that’s not always the case with our 4-year-old son,…

For our family, the early months of the year are the season to visit the pediatrician. With both of my boys born in this period…

Tedious background music drones on repeat. Or worse, a repetitive voice recording reminds you that the lines are full and your call is important. For…

There are many aspects of my son Finley’s journey with Alagille syndrome that I wish would stay in the past. One that stands out…

Last year, I wrote about celebrating my son Finley’s third birthday. I shared about that day to show that, although Finley has Alagille syndrome,…

Every six months, we see our gastrointestinal (GI) team at the children’s hospital. We’re fortunate to have continued to see the same two providers we…

Heading into the new year, one thing I’ve chosen to focus on is how I cope with challenges and obstacles in life. The last few…

I knew the questions that would come from my son Finley one day. We’ve been slowly teaching him about his Alagille syndrome. At almost…

I’m fortunate that my son Finley, who was born with Alagille syndrome, has had relatively good health since his diagnosis and subsequent treatment. The…

Raising young children entails a variety of obstacles. For me, one of the most challenging is sleep regression, a temporary decline of a child’s sleep.