Be Rare with Finn - a Column by Jay Sandstrom

My son Finley was recently invited to a birthday party for one of his best friends. He was so excited that he talked about it…

Routine is a huge part of the daily life of raising kids. They make the day go more smoothly, helping everyone know what to expect.

I wish raising children would come with a checklist. Every day there are so many items to check off in addition to work and staying…

I normally reserve this column for sharing stories about my son Finley, who was born with Alagille syndrome in 2021. Obviously, he deserves the…

If you spend enough time around something, you’ll start to notice it less and less. But that’s not always the case with our 4-year-old son,…

For our family, the early months of the year are the season to visit the pediatrician. With both of my boys born in this period…

Tedious background music drones on repeat. Or worse, a repetitive voice recording reminds you that the lines are full and your call is important. For…

There are many aspects of my son Finley’s journey with Alagille syndrome that I wish would stay in the past. One that stands out…

Last year, I wrote about celebrating my son Finley’s third birthday. I shared about that day to show that, although Finley has Alagille syndrome,…

Every six months, we see our gastrointestinal (GI) team at the children’s hospital. We’re fortunate to have continued to see the same two providers we…