Traveling with small children is challenging. While the destinations that are visited and the memories that are created are worth it, getting there entails a…
Be Rare with Finn - a Column by Jay Sandstrom
ALAGILLE SYNDROME
ColumnsShoe shopping for a child with Alagille was surprisingly difficult
I love shoes. Shoe collecting has been a hobby of mine for quite some time. A good pair of sneakers or boots can take your…
ALAGILLE SYNDROME
ColumnsOur son’s smaller size from Alagille syndrome creates obstacles
There are several words I’d use to describe my 3-year-old son, Finley. My wife, Dani, started a tradition for our two boys where each night…
ALAGILLE SYNDROME
ColumnsHearing the haunting words ‘failure to thrive’ to describe your baby
Feeding your newborn child can be stressful. There are so few things they can control in their young lives. It’s common for children to learn…
ALAGILLE SYNDROME
ColumnsMy son’s itchiness was a difficult Alagille symptom to monitor
There are many terms I had never heard prior to having a child with Alagille syndrome. One of them was cholestatic pruritus, otherwise…
ALAGILLE SYNDROME
ColumnsDrafting our elevator pitch for explaining Alagille syndrome
Having a newborn baby is an exciting time. If you need to go out in public, there is no hiding a newborn. They’re like a…
ALAGILLE SYNDROME
ColumnsThe journey to my newborn son’s diagnosis of Alagille syndrome
Before my son Finley was born in 2021, I had never heard of Alagille syndrome. For that matter, I had only surface-level knowledge of…
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