Doing our part to hasten a cure for our daughter’s PFIC3
A few years ago I received an unexpected phone call from Birmingham Children’s Hospital…
Itching and Scratching — Sophie Bourton
Sophie Bourton was born in Manchester, England, and now lives in rural Herefordshire with her young family. Sophie is a symptomatic carrier for progressive familial intrahepatic cholestasis and her daughter, Eva, has the disease. Sophie has worked for over 10 years advocating and fundraising for British wildlife before her daughter’s diagnosis and since then has been increasingly focusing on advocacy for rare liver disease. She is passionate about the benefits of the outdoors for mental and physical well-being, and in her spare time she’ll be found up to her knees in mud at her children’s forest school.
Our daughter’s PFIC diagnosis made us rethink drinking at Christmas
I love Christmas. What’s not to like about being with friends and family, taking winter walks, and eating too much food? My dad’s always been skeptical about the holiday’s consumerist nature, so we’ve lovingly nicknamed him Ebenezer Scrooge. As…
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