I was terrified of forgetfulness and brain fog, so I took action
Last May, I turned 56. I feel OK about being in middle age, but I’ve long had fears about growing old. What I didn’t anticipate…
Last May, I turned 56. I feel OK about being in middle age, but I’ve long had fears about growing old. What I didn’t anticipate…
Rare diseases bring a lot of unknowns to the lives of patients, caregivers, and family members. We caregivers often worry about what might be looming…
Before I learned I was pregnant, I used to participate in medical studies to earn a little extra money. Living in a city with two…
Every time I meet another family raising a child with Alagille syndrome, the topic of medication comes up. I have found that parents and…
In my nearly century-old house, most of my floors are hardwood or tile. In 1929, brooms did the trick, but my two cats, though short-haired,…
Bedtime has been tricky in my house over the past few months. My son Finley, who was born with Alagille syndrome, just doesn’t seem…
This week, I was on the hunt for a party dress for my 14-year-old daughter, who was invited to her best friend’s birthday party. I’ve…
Traveling with young kids is always a bit of a gamble. Now that my boys are 7 and 4, they’re a heck of a lot…
To me, modern life equals stress. Like everyone else, I’m not immune to the effects of stress on my life. However, as a single mother…
Vacation is all most of us ever want after slogging through spring’s yearning and the early promise of a great summer. We fly to foreign…