Columns

Some of my least-favorite calls to make are to cancel doctor appointments. Maybe it’s the Jenga-like way I have to wedge them into my life.

It’s truly rewarding as a parent to see the things that make your children proud. For my 5-year-old son, Finley, it’s making his bed every…

Yesterday, as I puttered around my house doing some spring cleaning, I watched a gray, rainy sky turn to snow. The flakes were the chunky…

Being thrust into the world of rare diseases has been interesting. If you don’t have a personal connection to rare diseases, it’s easy to feel…

My childhood home was a warm place with two loving parents, my siblings, our pets, and a steady stream of family members and friends constantly…

Lately, I’ve found it easier to settle into the flow of daily life than in previous years. Routines have developed, and the weekly rhythms now…

Note: This column describes the author’s own experiences with vitamin supplementation. Not everyone will have the same response to treatment. Consult your doctor before starting…

Now that my son Finley is 5, I’ve been reflecting a lot. That’s why so many of my recent columns have focused on the milestones…

I’m not perfect. Sure, I’d love to possess the unshakable confidence of people who seem convinced they are, but I’ve learned to accept most of…

While my “Be Rare with Finn” column focuses on my youngest son, Finley, and his journey with Alagille syndrome, Finley is not my only…