Potty training, in my experience, has to be one of the hardest parts of parenting a young child. For my 4-year-old son, Finley, who is…
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FATTY LIVER DISEASE
ColumnsSometimes fatty liver disease is a family affair
I’m used to my teenage daughter’s eye rolls and heavy sighs when I talk about her health. I’ve had so many crazy things happen in…
ALAGILLE SYNDROME
ColumnsSetting my worries aside as my son tries different activities
My son Finley is a little ball of energy. He is super active and doesn’t like to rest or sleep. At 4 years old, he’s…
FATTY LIVER DISEASE
ColumnsLiver medication can be expensive, but it doesn’t have to be
Every month, I receive deliveries of my medications, most of them for my metabolic-associated steatohepatitis (MASH), a fatty liver disease. I probably don’t need…
ALAGILLE SYNDROME
ColumnsLearning to give grace to our sometimes mercurial 4-year-old
Saying that 4-year-olds can have crazy attitudes is not a groundbreaking statement. It’s not unusual for my son Finley to have wild swings from happy…
FATTY LIVER DISEASE
ColumnsHow clay sculpting helps me cope with my MASH diagnosis
The first time I ever held a ball of clay — OK, it was probably Play-Doh — I felt a strong connection to creating things…
ALAGILLE SYNDROME
ColumnsWhy ultrasounds bring out my parental anxiety
Taking my son Finley to various doctor appointments is nothing new. Since he was born a month early, visiting doctors and seeing various specialists…
CHOLESTASIS
ColumnsTelling our 4-year-old that she has familial ‘tummy trouble’
I’ve often wondered how and when we’ll tell our daughter Eva that she has progressive familial intrahepatic cholestasis (PFIC), a rare liver disease. Most…
FATTY LIVER DISEASE
ColumnsManaging the itching associated with fatty liver disease
One thing I used to look forward to every spring was the end of my dry skin — a result of winter’s harsh rebuke of…
ALAGILLE SYNDROME
ColumnsPreparing my son for warmer weather, which exacerbates his itch
Here in the Pacific Northwest, we are inching into spring. This season brings days that tease us about what the weather could be. A recent…
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