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Taking my son Finley to various doctor appointments is nothing new. Since he was born a month early, visiting doctors and seeing various specialists…

I’ve often wondered how and when we’ll tell our daughter Eva that she has progressive familial intrahepatic cholestasis (PFIC), a rare liver disease. Most…

One thing I used to look forward to every spring was the end of my dry skin — a result of winter’s harsh rebuke of…

Here in the Pacific Northwest, we are inching into spring. This season brings days that tease us about what the weather could be. A recent…

My son Finley was recently invited to a birthday party for one of his best friends. He was so excited that he talked about it…

If you’re like me, there’s no shortage of well-meaning folks who, upon hearing that we’re sick, are eager to help. Perhaps they’ll turn to “Dr.

Routine is a huge part of the daily life of raising kids. They make the day go more smoothly, helping everyone know what to expect.

I wish raising children would come with a checklist. Every day there are so many items to check off in addition to work and staying…

I have a confession to make: I’ve been a bad advocate for progressive familial intrahepatic cholestasis (PFIC). OK, maybe I haven’t been a bad…

When I first learned that my liver was failing, I didn’t know anyone who had what I had: cirrhosis from fatty liver disease, specifically,…