Managing the itching associated with fatty liver disease
One thing I used to look forward to every spring was the end of my dry skin — a result of winter’s harsh rebuke of…
Columns
Preparing my son for warmer weather, which exacerbates his itch
Here in the Pacific Northwest, we are inching into spring. This season brings days that tease us about what the weather could be. A recent…
Celebrating my son’s growth with Alagille syndrome
My son Finley was recently invited to a birthday party for one of his best friends. He was so excited that he talked about it…
My diet for a healthy liver came from my doctor and a nutritionist
If you’re like me, there’s no shortage of well-meaning folks who, upon hearing that we’re sick, are eager to help. Perhaps they’ll turn to “Dr.
Taking vitamins is a challenging change of routine
Routine is a huge part of the daily life of raising kids. They make the day go more smoothly, helping everyone know what to expect.
Giving ourselves grace amid a hectic schedule and missed appointments
I wish raising children would come with a checklist. Every day there are so many items to check off in addition to work and staying…
Life as a PFIC caregiver is hectic, but I can still make an ‘IMPACT’
I have a confession to make: I’ve been a bad advocate for progressive familial intrahepatic cholestasis (PFIC). OK, maybe I haven’t been a bad…
Having friends to share my disease with, so we will go farther together
When I first learned that my liver was failing, I didn’t know anyone who had what I had: cirrhosis from fatty liver disease, specifically,…
Why community is important for parents of children with Alagille
I normally reserve this column for sharing stories about my son Finley, who was born with Alagille syndrome in 2021. Obviously, he deserves the…
While treatment has helped my son, the itch never entirely fades
If you spend enough time around something, you’ll start to notice it less and less. But that’s not always the case with our 4-year-old son,…
