I have mixed feelings as summer begins to pack up shop for the year. This season has a certain energy, like a house party with…
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ALAGILLE SYNDROME
ColumnsFacing unexpected complications after a routine surgery
The last few weeks have been a roller coaster as we near the end of summer, prepare for school to start, and navigate a surgery…
FATTY LIVER DISEASE
ColumnsMASH motivates me to help my family make healthy choices
My daughter has never asked much about my health, let alone how I live with metabolic dysfunction-associated steatohepatitis (MASH). I don’t expect her to…
ALAGILLE SYNDROME
ColumnsNew battles royales as new medicines are added to the mix
My son Finley is like most other kids his age: He benefits from routine and likes knowing what to expect. He’s not a fan of…
FATTY LIVER DISEASE
ColumnsWhy ‘Dr. Google’ is a poor substitute for my liver doctor
Having a chronic disease like my metabolic dysfunction-associated steatohepatitis (MASH) can play tricks on not just your body, but also your mind. Case in…
FATTY LIVER DISEASE
ColumnsHow I find healthy foods on a budget while living with MASH
Eating is one of my pleasures in life, especially when the food is good. However, my current diet is much healthier than it was when…
ALAGILLE SYNDROME
ColumnsPreparing my son with Alagille syndrome, and myself, for surgery
Preparing a child for surgery is scary, as I’m being reminded. My 4-year-old son, Finley, is scheduled to have a small procedure to fix a…
FATTY LIVER DISEASE
ColumnsI was terrified of forgetfulness and brain fog, so I took action
Last May, I turned 56. I feel OK about being in middle age, but I’ve long had fears about growing old. What I didn’t anticipate…
ALAGILLE SYNDROME
ColumnsSometimes I wonder what ‘stable’ means regarding my son’s health
Rare diseases bring a lot of unknowns to the lives of patients, caregivers, and family members. We caregivers often worry about what might be looming…
FATTY LIVER DISEASE
ColumnsWhy it’s important to participate in medical studies about MASH
Before I learned I was pregnant, I used to participate in medical studies to earn a little extra money. Living in a city with two…
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