Every month, I receive deliveries of my medications, most of them for my metabolic-associated steatohepatitis (MASH), a fatty liver disease. I probably don’t need…
Columns
ALAGILLE SYNDROME
ColumnsLearning to give grace to our sometimes mercurial 4-year-old
Saying that 4-year-olds can have crazy attitudes is not a groundbreaking statement. It’s not unusual for my son Finley to have wild swings from happy…
FATTY LIVER DISEASE
ColumnsHow clay sculpting helps me cope with my MASH diagnosis
The first time I ever held a ball of clay — OK, it was probably Play-Doh — I felt a strong connection to creating things…
ALAGILLE SYNDROME
ColumnsWhy ultrasounds bring out my parental anxiety
Taking my son Finley to various doctor appointments is nothing new. Since he was born a month early, visiting doctors and seeing various specialists…
CHOLESTASIS
ColumnsTelling our 4-year-old that she has familial ‘tummy trouble’
I’ve often wondered how and when we’ll tell our daughter Eva that she has progressive familial intrahepatic cholestasis (PFIC), a rare liver disease. Most…
FATTY LIVER DISEASE
ColumnsManaging the itching associated with fatty liver disease
One thing I used to look forward to every spring was the end of my dry skin — a result of winter’s harsh rebuke of…
ALAGILLE SYNDROME
ColumnsPreparing my son for warmer weather, which exacerbates his itch
Here in the Pacific Northwest, we are inching into spring. This season brings days that tease us about what the weather could be. A recent…
ALAGILLE SYNDROME
ColumnsCelebrating my son’s growth with Alagille syndrome
My son Finley was recently invited to a birthday party for one of his best friends. He was so excited that he talked about it…
FATTY LIVER DISEASE
ColumnsMy diet for a healthy liver came from my doctor and a nutritionist
If you’re like me, there’s no shortage of well-meaning folks who, upon hearing that we’re sick, are eager to help. Perhaps they’ll turn to “Dr.
ALAGILLE SYNDROME
ColumnsTaking vitamins is a challenging change of routine
Routine is a huge part of the daily life of raising kids. They make the day go more smoothly, helping everyone know what to expect.
Recent Posts
- Don’t let living with MASH stop you from your New Year’s goals
- Frequent bile acid level checks urged to predict stillbirth in severe ICP
- Wegovy cleared in Canada to treat fatty liver disease MASH
- Medications known as IBATIs are safe, effective in Alagille: Analysis
- New rapid test could accelerate hepatitis C diagnosis and treatment