Shipping medication is convenient, but it can also provoke anxiety
I’d describe myself as pretty easygoing. I’m by no means a control freak, but I’m also the type of person who likes paying bills one…
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Just plain water is your fatty liver’s best friend
Have you ever woken up from a deep sleep with a cotton mouth, desperately needing refreshment? If you’re like me, the first thing you crave…
Managing potty training difficulties with my son with Alagille
Potty training, in my experience, has to be one of the hardest parts of parenting a young child. For my 4-year-old son, Finley, who is…
Sometimes fatty liver disease is a family affair
I’m used to my teenage daughter’s eye rolls and heavy sighs when I talk about her health. I’ve had so many crazy things happen in…
Setting my worries aside as my son tries different activities
My son Finley is a little ball of energy. He is super active and doesn’t like to rest or sleep. At 4 years old, he’s…
Liver medication can be expensive, but it doesn’t have to be
Every month, I receive deliveries of my medications, most of them for my metabolic-associated steatohepatitis (MASH), a fatty liver disease. I probably don’t need…
Learning to give grace to our sometimes mercurial 4-year-old
Saying that 4-year-olds can have crazy attitudes is not a groundbreaking statement. It’s not unusual for my son Finley to have wild swings from happy…
How clay sculpting helps me cope with my MASH diagnosis
The first time I ever held a ball of clay — OK, it was probably Play-Doh — I felt a strong connection to creating things…
Why ultrasounds bring out my parental anxiety
Taking my son Finley to various doctor appointments is nothing new. Since he was born a month early, visiting doctors and seeing various specialists…
Telling our 4-year-old that she has familial ‘tummy trouble’
I’ve often wondered how and when we’ll tell our daughter Eva that she has progressive familial intrahepatic cholestasis (PFIC), a rare liver disease. Most…
