A few years ago, I had a frightening visit with my doctor. I’d just moved into my new house and changed my cellphone number, and…
Columns
ALAGILLE SYNDROME
ColumnsAn easy transition to new vitamins is a breakthrough for my son
Our son Finley is a strong-willed and determined little guy. As he approaches his fifth birthday, he’s not shy about sharing his opinions. If he…
FATTY LIVER DISEASE
ColumnsAccess to food is a survival tactic when your liver needs nutrition
Growing up in a dusty Utah town, my life looked nothing like the one I lead today. My parents worked hard, but the early 1980s…
ALAGILLE SYNDROME
ColumnsParents and son are all on a path of discovery with Alagille syndrome
Our son Finley was born with Alagille syndrome in 2021. Since then, I’ve been on a journey to learn about his rare disease and…
FATTY LIVER DISEASE
ColumnsThis fatty liver disease diagnosis reminded me heroes are human
When I was a teenager, I fell in love with football. Growing up in Utah, a place that still doesn’t have an NFL franchise, meant…
ALAGILLE SYNDROME
ColumnsA boys’ day out brings a welcome sense of normalcy
When I brainstorm column topics, I often find that I lean into the stress and anxiety that come from raising a child with a rare…
FATTY LIVER DISEASE
ColumnsWith MASH, managing pain after a major surgery is tricky
It’s been two and a half weeks since I had a total knee replacement, and I’ve been managing a lot. Mostly, that’s been pain, but…
ALAGILLE SYNDROME
ColumnsAlagille made us constantly worry about child milestones
Watching your child achieve milestones is one of the most rewarding aspects of being a parent. The joy they exude when learning or accomplishing something…
FATTY LIVER DISEASE
ColumnsQuitting drinking was the best decision I ever made
As I write this, the sun is rising. This crisp, lovely time of year is my favorite season — the calm just before the holiday…
ALAGILLE SYNDROME
ColumnsKeeping that cloud of uncertainty at bay for yet another day
Alagille syndrome is such an interesting condition in that it affects every individual differently. With my 4-year-old son, Finley, who has the syndrome, much…
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