Columns

Our son Finley was born with Alagille syndrome in 2021. Since then, I’ve been on a journey to learn about his rare disease and…

When I was a teenager, I fell in love with football. Growing up in Utah, a place that still doesn’t have an NFL franchise, meant…

When I brainstorm column topics, I often find that I lean into the stress and anxiety that come from raising a child with a rare…

It’s been two and a half weeks since I had a total knee replacement, and I’ve been managing a lot. Mostly, that’s been pain, but…

Watching your child achieve milestones is one of the most rewarding aspects of being a parent. The joy they exude when learning or accomplishing something…

As I write this, the sun is rising. This crisp, lovely time of year is my favorite season — the calm just before the holiday…

Alagille syndrome is such an interesting condition in that it affects every individual differently. With my 4-year-old son, Finley, who has the syndrome, much…

Shortly after I was diagnosed with metabolic dysfunction-associated steatohepatitis (MASH), my gastroenterologist told me that, unless it was an emergency, elective surgeries were off…

When I was in fourth grade, I was suddenly promoted into the gifted and talented program. I didn’t realize that being a mouthy brat who…

Life has been busy in our household. School has been in session for over a month, our oldest son is playing fall baseball, and we…