Telling our 4-year-old that she has familial ‘tummy trouble’
I’ve often wondered how and when we’ll tell our daughter Eva that she has progressive familial intrahepatic cholestasis (PFIC), a rare liver disease. Most…
I’ve often wondered how and when we’ll tell our daughter Eva that she has progressive familial intrahepatic cholestasis (PFIC), a rare liver disease. Most…
One thing I used to look forward to every spring was the end of my dry skin — a result of winter’s harsh rebuke of…
Here in the Pacific Northwest, we are inching into spring. This season brings days that tease us about what the weather could be. A recent…
My son Finley was recently invited to a birthday party for one of his best friends. He was so excited that he talked about it…
If you’re like me, there’s no shortage of well-meaning folks who, upon hearing that we’re sick, are eager to help. Perhaps they’ll turn to “Dr.
Routine is a huge part of the daily life of raising kids. They make the day go more smoothly, helping everyone know what to expect.
I wish raising children would come with a checklist. Every day there are so many items to check off in addition to work and staying…
I have a confession to make: I’ve been a bad advocate for progressive familial intrahepatic cholestasis (PFIC). OK, maybe I haven’t been a bad…
When I first learned that my liver was failing, I didn’t know anyone who had what I had: cirrhosis from fatty liver disease, specifically,…
I normally reserve this column for sharing stories about my son Finley, who was born with Alagille syndrome in 2021. Obviously, he deserves the…