Columns

My son Finley is like most other kids his age: He benefits from routine and likes knowing what to expect. He’s not a fan of…

Having a chronic disease like my metabolic dysfunction-associated steatohepatitis (MASH) can play tricks on not just your body, but also your mind. Case in…

Eating is one of my pleasures in life, especially when the food is good. However, my current diet is much healthier than it was when…

Preparing a child for surgery is scary, as I’m being reminded. My 4-year-old son, Finley, is scheduled to have a small procedure to fix a…

Last May, I turned 56. I feel OK about being in middle age, but I’ve long had fears about growing old. What I didn’t anticipate…

Rare diseases bring a lot of unknowns to the lives of patients, caregivers, and family members. We caregivers often worry about what might be looming…

Before I learned I was pregnant, I used to participate in medical studies to earn a little extra money. Living in a city with two…

Every time I meet another family raising a child with Alagille syndrome, the topic of medication comes up. I have found that parents and…

In my nearly century-old house, most of my floors are hardwood or tile. In 1929, brooms did the trick, but my two cats, though short-haired,…

Bedtime has been tricky in my house over the past few months. My son Finley, who was born with Alagille syndrome, just doesn’t seem…