I wish raising children would come with a checklist. Every day there are so many items to check off in addition to work and staying…
Columns
CHOLESTASIS
ColumnsLife as a PFIC caregiver is hectic, but I can still make an ‘IMPACT’
I have a confession to make: I’ve been a bad advocate for progressive familial intrahepatic cholestasis (PFIC). OK, maybe I haven’t been a bad…
FATTY LIVER DISEASE
ColumnsHaving friends to share my disease with, so we will go farther together
When I first learned that my liver was failing, I didn’t know anyone who had what I had: cirrhosis from fatty liver disease, specifically,…
ALAGILLE SYNDROME
ColumnsWhy community is important for parents of children with Alagille
I normally reserve this column for sharing stories about my son Finley, who was born with Alagille syndrome in 2021. Obviously, he deserves the…
ALAGILLE SYNDROME
ColumnsWhile treatment has helped my son, the itch never entirely fades
If you spend enough time around something, you’ll start to notice it less and less. But that’s not always the case with our 4-year-old son,…
CHOLANGITIS
ColumnsHow I advocated for my brother before and after his PSC diagnosis
“I can’t explain why, but I don’t feel well,” my younger brother, Osari, said. He was 32 years old at the time. That statement was…
CHOLESTASIS
ColumnsTo test or not to test for PFIC3? Our families face the question.
The ripples of progressive familial intrahepatic cholestasis (PFIC) continue to spread throughout our family, as branches of the family tree are tested to see…
FATTY LIVER DISEASE
ColumnsI didn’t pay attention to my health until it took a turn for the worse
Groundhog Day is probably my favorite holiday. It’s pretty noncontroversial, really. Unless you really hate winter, you probably don’t have any problems with Punxsutawney Phil…
ALAGILLE SYNDROME
ColumnsThe value of the yearly pediatrician appointment
For our family, the early months of the year are the season to visit the pediatrician. With both of my boys born in this period…
ALAGILLE SYNDROME
ColumnsWith so many specialists, scheduling appointments can be tricky
Tedious background music drones on repeat. Or worse, a repetitive voice recording reminds you that the lines are full and your call is important. For…
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