This morning I woke up to a changed forest outside my window. I live in a beautiful park in Baltimore, and I bought my house…
Columns
ALAGILLE SYNDROME
ColumnsOptimism replaces worry following a post-surgery scare
Back in August, I wrote about managing my worries as we prepared for a small surgery to correct a hydrocele in our 4-year-old son,…
FATTY LIVER DISEASE
ColumnsA smartwatch helps me monitor symptoms of fatty liver disease
Since I learned I’d become a full-fledged metabolic dysfunction-associated steatohepatitis (MASH) patient, I’ve collected an assortment of friends with different medical issues. One of…
ALAGILLE SYNDROME
ColumnsAdapting to a new routine is made harder by regular hospital visits
Our family has been extremely busy lately. The beginning of the school year is always an exciting yet exhausting time as we settle back into…
FATTY LIVER DISEASE
ColumnsWhen facing a hospital stay, pack a bag and hope for chocolate cake
I enjoy listening to the sounds of the city outside my bedroom window at night. Cars hum down the thoroughfare where I live, their headlights…
ALAGILLE SYNDROME
ColumnsSavoring the everyday moments that bring joy to our lives
When my youngest son, Finley, was diagnosed with Alagille syndrome, a million questions flooded my mind. I wanted to know if he’d be able…
FATTY LIVER DISEASE
ColumnsTaking care of our teeth is crucial with liver disease
For as long as I can remember, I’ve dreaded visiting the dentist. It started in childhood with a mean dentist who’d once had his thumb…
When I brainstorm ideas for columns, I often end up focusing on similar themes, such as anxiety, stress, complications, difficulties. All those are definitely…
FATTY LIVER DISEASE
ColumnsWith liver disease, getting a good night’s sleep is crucial
I have mixed feelings as summer begins to pack up shop for the year. This season has a certain energy, like a house party with…
ALAGILLE SYNDROME
ColumnsFacing unexpected complications after a routine surgery
The last few weeks have been a roller coaster as we near the end of summer, prepare for school to start, and navigate a surgery…
Recent Posts
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