Last May, I turned 56. I feel OK about being in middle age, but I’ve long had fears about growing old. What I didn’t anticipate…
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ALAGILLE SYNDROME
ColumnsSometimes I wonder what ‘stable’ means regarding my son’s health
Rare diseases bring a lot of unknowns to the lives of patients, caregivers, and family members. We caregivers often worry about what might be looming…
FATTY LIVER DISEASE
ColumnsWhy it’s important to participate in medical studies about MASH
Before I learned I was pregnant, I used to participate in medical studies to earn a little extra money. Living in a city with two…
ALAGILLE SYNDROME
ColumnsMy son has his own understanding of his liver disease medications
Every time I meet another family raising a child with Alagille syndrome, the topic of medication comes up. I have found that parents and…
FATTY LIVER DISEASE
ColumnsThe benefits of having a pet while living with liver disease
In my nearly century-old house, most of my floors are hardwood or tile. In 1929, brooms did the trick, but my two cats, though short-haired,…
ALAGILLE SYNDROME
ColumnsA big-boy bed has been a positive change for our son with Alagille
Bedtime has been tricky in my house over the past few months. My son Finley, who was born with Alagille syndrome, just doesn’t seem…
FATTY LIVER DISEASE
ColumnsHow weight loss can benefit those of us with liver disease
This week, I was on the hunt for a party dress for my 14-year-old daughter, who was invited to her best friend’s birthday party. I’ve…
ALAGILLE SYNDROME
ColumnsLetting go of worry on our Universal Studios vacation
Traveling with young kids is always a bit of a gamble. Now that my boys are 7 and 4, they’re a heck of a lot…
FATTY LIVER DISEASE
ColumnsStress management skills are a big part of my healthcare plan
To me, modern life equals stress. Like everyone else, I’m not immune to the effects of stress on my life. However, as a single mother…
FATTY LIVER DISEASE
ColumnsEating healthy over the summer is vital with liver disease
Vacation is all most of us ever want after slogging through spring’s yearning and the early promise of a great summer. We fly to foreign…
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