My son’s itchiness was a difficult Alagille symptom to monitor
There are many terms I had never heard prior to having a child with Alagille syndrome. One of them was cholestatic pruritus, otherwise…
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Itching and scratching our way to a PFIC diagnosis
My childhood neighbor was a university lecturer. One of my earlier memories of her is when she told me, “Sophie, you aren’t nosy. You’re inquisitive,…
Drafting our elevator pitch for explaining Alagille syndrome
Having a newborn baby is an exciting time. If you need to go out in public, there is no hiding a newborn. They’re like a…
The journey to my newborn son’s diagnosis of Alagille syndrome
Before my son Finley was born in 2021, I had never heard of Alagille syndrome. For that matter, I had only surface-level knowledge of…
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